CNS Legislative Committee MEETING MINUTES - Wednesday, April 16, 2025

California Neurology Society CNS • April 17, 2025

The team discusses their upcoming meeting on April 30th at the Citizen Hotel

Quick recap


The team discussed their upcoming meeting on April 30th at the Citizen Hotel, where they would form final meeting groups for May 1st and meet with legislators and their staff. They also prepared for a potential presentation, with flexibility to adjust based on group size, and discussed the need for a basic script for each person to follow during the meetings. The team also discussed their plans for adding legislative interests, focusing on issues: duty of care, epilepsy transportation, and youth tackle football, and the potential involvement of the YAWE team in the capitol presentations.


Next Steps

  • Selim to update and print out the document with all bills CNS is tracking, including their stance and current status, for the April 30th meeting.
  • Steve and Selim to coordinate on contacting Assembly member Tangipa's office to confirm his attendance at the conference.
  • Joanna to write up a paragraph about the epilepsy transportation issue and send it to the group for review.
  • Dorian to update the website with information about the Capitol tour, including a brief description and a link to register.
  • Selim to include the youth tackle football resolution in the folder for legislators' offices.
  • Joanna to prepare a 5-minute presentation with slides on the epilepsy transportation issue, to be inserted between Richard Pan and Jeff Klingman's talks on May 1st.
  • Dorian to update the May 1st conference schedule, moving Richard Pan's talk to 10:20 AM.
  • All members to meet next week at 7 PM to finalize and approve all written materials for the conference.
  • Joanna to submit her presentation slides to Priscilla Graham for CME approval.
  • Selim to follow up weekly with Assembly member Tangipa's office to remind them about the conference and reception.


Summary


Upcoming Meeting at Citizen Hotel

Stella, Steven, Dorian, Selim, Steve, and Johanna discussed their upcoming meeting on April 30th at the Citizen Hotel. The agenda included forming final meeting groups for May 1st, when they would meet with legislators and their staff. Selim mentioned that the meeting would be in person and start at 6 pm. Stella also mentioned the use of AI to record and take notes during the meeting. Johanna had sent prior meeting minutes; tonight’s which Stella would forward for approval and Dorian's posting.


Planning Office Visits and Meetings

In the meeting, Johanna and Stella agreed to prepare for a potential presentation, with flexibility to adjust based on group size. Selim outlined the plan to visit five offices, with two meetings at 1:30 PM and two at 2 PM, and one after that. The groups would consist of three to four people. Stella and Selim discussed the need to form meeting groups and the schedule for the visits. They also discussed the need for a basic script for each person to follow during the meetings. Selim confirmed that they have handouts summarizing each topic and letters of support or opposition. The team agreed to finalize the details during their meeting on April 30th.


Patient Stories for Legislative Presentation

In the meeting, Steven, Stella, Steve, and Selim discussed the preparation for a presentation to legislators. They agreed that each person should present a patient story related to a specific issue, such as Parkinson's, youth football, or brain computer interface. The stories should be rehearsed ahead of time to avoid any surprises during the presentation. Stella emphasized the importance of patient consent in the context of brain computer interface. The group also discussed the need for each issue to be presented briefly, with a total of 10 minutes allocated for all three issues. The conversation ended with the group agreeing to identify the presenters for each issue on April 30th.


Legislative Event Planning and Materials

The group discusses plans for an upcoming legislative event and related materials. They decide to create handouts for both legislators and their own group, covering their main focus issues as well as other neurology-related bills. Selim and Steve will collaborate on preparing a concise summary of relevant bills, including those supported by the California Medical Association. Johanna suggests inviting the authors and staff members of neurology-related bills to their reception, and Selim confirms he has received postcards to send out invitations.


Epilepsy, Duty of Care, and Youth Tackle Football

The team discussed their upcoming event, focusing on three key issues: duty of care, epilepsy transportation, and youth tackle football. They decided to invite a representative from the Republican party to the event, despite not having a direct connection to their issues. The team also discussed the possibility of overriding the governor's veto on duty of care. They agreed to stick to the three issues and use creative patient stories to support their cause. The team also discussed the potential of adding a resolution regarding youth tackle football, using the NFL's flag football solution as a template.


Planning for Upcoming Event Discussion

Stella, Selim, Johanna, and others discussed their plans for the upcoming event. They decided to include a talk by Scott about the conference calendar, a session on how to make a bill happen by Garrett Jensen, and a discussion on how CMA and CNS can work together led by Stuart Thompson. They also planned to involve young adults with epilepsy in their grassroots efforts. Jeff was assigned to give an overview of CTE and concussions, while Richard Pan was to share his experience as a legislator. The team also discussed the possibility of making a resolution happen.


CMA's Legislative Agenda and Influence

In the meeting, Steven expressed the need for the California Medical Association (CMA) to be more aware of the aggressive legislative agenda of their organization. Stella suggested that the CMA could gain more influence if they understood their efforts. Steve mentioned that Stuart Thompson, who is ahead of the advocacy unit, would be speaking on Thursday. Selim confirmed that Assembly member Tangipa had registered for the conference. The team discussed the need to follow up with Tangipa and other attendees. They also discussed the possibility of a capital tour and the need to register for it. Selim suggested that the resolutions folder should include the youth tackle resolution and the epilepsy transportation act. The team agreed to finalize the resolutions and leave them with the offices.


Epilepsy Transportation Issue Paper Discussion

In the meeting, Steven discussed the strategy of including a packet with their interpersonal presentation to legislators. He emphasized the importance of not overloading the packet and suggested including teasers to draw the legislators' interest. Johanna proposed writing an issue paper on epilepsy transportation and suggested a meeting to discuss and finalize the content. Stella suggested including a young adult with epilepsy in the group to present their separate issue. Steve agreed to the idea of introducing a spokesperson to discuss the difficulties faced by those dealing with transportation issues. The team agreed to meet again to finalize the content and strategy.


YAWE Team Involvement in Conference

In the meeting, Stella, Johanna, Steve, and Dorian discussed the upcoming conference and the potential involvement of the YAWE team. They agreed to have the YAWE team present at the conference and Johanna proposed to present a 5-minute talk about the finances of having a driver's license taken away, losing a job, and where the tax money is going. They also discussed the possibility of inviting the YAWE team to the conference reception. The team decided to move Dr. Pan's talk to 10:20 and Johanna eventually agreed to be a backup presenter if someone cancels. They also discussed the potential for Johanna and Jeff to share a slot in the conference. The team agreed to meet again next week to finalize the conference program and flyers.

Doctor filling out paperwork with degrees behind her
By California Neurology Society CNS April 28, 2025
UnitedHealthcare and HCSC Accept NBPAS Certification
By California Neurology Society CNS April 25, 2025
One week until Conference and Legislative Day
By California Neurology Society CNS April 17, 2025
CNS Reviews Bills and Votes on Measures of Support or Opposition
By California Neurology Society CNS April 4, 2025
Quick recap The team discussed the financial implications of transportation for people with epilepsy and proposed potential solutions, including allocating a dollar from truck registration towards retraining or local transportation budgets. They also discussed healthcare policies, particularly a bill aiming to align the standards of administering life-saving medicines to people with seizures in adult day centers with FDA standards. Lastly, they discussed the risks of head injuries in children playing tackle football and the potential for introducing a bill to raise awareness about the impact of head injuries on children's brain development. Next steps Selim to send conference information to Sean Porter. Selim to create or coordinate creation of a formal invitation for the legislative reception on May 1st. Johanna to contact Sean Porter about potential legislation sponsorship and discuss the epilepsy transportation issue. Stella to write a letter to the NFL praising them for flag football and encouraging them to promote safety in youth football. Johanna to resubmit the full CMA resolution documents, ensuring all content fits within the submission guidelines. Selim to contact the Governor's office and healthcare representatives to invite them to speak at the May 1st legislative day. Johanna to attend the CMA legislative day on May 21st, arriving the night before. Jeff to attend the CMA legislative day on May 21st. Legislative team to continue pursuing the head injury bill with potential sponsors. Johanna to follow up with Michelle Rodriguez's office about attending the May 1st reception and potentially meeting with the team. Summaries Transportation Funding for Epilepsy Patients Johanna discussed the financial implications of transportation for people with epilepsy, suggesting that those who cannot drive due to their condition should receive a portion of the taxes paid by those who can drive. She proposed a potential solution of allocating a dollar from the registration of 18-wheeler trucks towards retraining or budget for local transportation departments. Steve agreed with Johanna's points about the funding and taxation system, but expressed concerns about the feasibility of taxing truck drivers due to their strong union. The conversation ended with Stella and Nick joining the conversation. Healthcare Policy Discussion and Support Selim, Dr. Stella Legarda, Dr. Joanna Rosenthal, and Steve Cattolica met with Nick, a legislative representative, to discuss healthcare policies. They expressed support for a bill, Assembly Bill 369, which aims to align the standards of who can administer life-saving medicines to people with seizures in adult day centers with FDA standards. They also discussed the possibility of Nick's office giving a talk about the bill at their upcoming conference in Sacramento. Additionally, they mentioned a previous bill, the Levine Bill, which they supported and was recently passed. Addressing Tackle Football Risks in Children Johanna and Stella discussed the risks of head injuries in children playing tackle football, particularly in the developing brain. They mentioned a bill that partially went through last year, which required parents to sign a waiver acknowledging the risks. They also discussed a study by Boston University's CTE Center, which found that 100% of professional football players under 30 had chronic traumatic encephalopathy (CTE). Stella suggested that the National Football League should prioritize long-term brain health in children and proposed a joint resolution between the House and Senate to create an age limit for tackle football, similar to other contact sports. Addressing Head Injuries and Epilepsy In the meeting, Johanna, Stella, and Nick discussed the possibility of introducing a bill to raise awareness about the impact of head injuries on children's brain development and the subsequent challenges faced by those affected. They agreed that the bill should be the primary focus, with a resolution as a fallback option. Nick committed to discussing the idea with his team and superiors, acknowledging the challenge of securing funding in the current budget deficit. The team also discussed the potential for job training programs and transportation assistance for individuals with epilepsy who lose their driver's licenses. The conversation ended with the understanding that the issue is underserved and needs to be addressed. Bill Language and Legislative Session Nick agreed to follow up on the ideas discussed with his team and send the bill language to Stella for support. Johanna reminded Nick of a February 21st deadline for new legislation and asked about the number of bills his department was sponsoring. Nick clarified that they were limited due to the shortened session and the new member's role. Johanna proposed an invitation for Nick's department to attend the legislative session on May 1st and visit the office in the Capitol. Nick agreed to this and provided Selim with the scheduler's email. Steve expressed his appreciation for the bill and the progress it aimed to achieve. State Funding and Project Income Johanna and Stella discussed the challenges of generating income for their projects and the need to approach the state for funding. They also discussed their interactions with the Principal Consultant on the Senate Transportation Committee, Melissa White, who advised them against asking for money, suggesting instead to extend the service to the population. Johanna expressed her belief that they could find a workaround and generate income from the state, while Stella emphasized the importance of presenting their goals clearly and avoiding the perception of asking for extra money. They agreed to continue their efforts and to invite the legislative assistant to a meeting to further discuss their plans. Youth Sports Concussion Prevention Efforts Stella, Johanna, and Selim discussed the committee's legislative efforts, particularly focusing on concussion prevention in youth sports. They agreed on the need for a joint resolution between the House and the Senate to limit contact sports for under-12s, rather than a bill. They also discussed the potential for using the legislation as a bargaining chip with the NFL. Johanna mentioned that she had sent letters to the NFL and other organizations, and Stella suggested writing a letter to the NFL praising their adoption of flag football. The team also discussed the importance of Selim speaking up in meetings, as he has a strong understanding of the legislative process. Lastly, they planned to invite representatives from the Governor's office to their upcoming legislative day. Epilepsy Medication and Transportation Discussion Johanna, Stella, Jeff, and Selim discussed various topics, including epilepsy medication, transportation for epilepsy patients, and potential legislation. Stella mentioned a bill she was involved with last year, which allowed school personnel to administer epilepsy medication to students. Johanna suggested a new approach to claw back some of the money epilepsy patients pay for transportation they can't use. Jeff agreed, stating that it wouldn't cost much for transportation agencies to provide free transportation for epilepsy patients. They also discussed the possibility of bringing the issue to a state level, as opposed to individual municipalities. Selim asked about reaching out to Sean Porter, and Johanna agreed to do so. Lastly, they discussed the upcoming CMA resolutions and the possibility of attending a legislative day on May 21st.
By California Neurology Society CNS April 4, 2025
Legislative Committee Meeting Minutes Here is a summary of the meeting: Steve C: Set up a May 1 meeting with the governor’s office Health staffer. Start a template letter for staffers to present. Start a template letter to write to the DOJ regarding MOC, to co-author with Bob and Stella. Selim: Contact offices of representatives to request 15-minute meetings on May 1. Sign the organization onto CapitolTrack, with Jeff and Stella covering the monthly charge until Robyn Treasurer takes over. Organize Capitol visits to member offices with Johanna. Jeff K: Contact the CMA chief lobbyist to discuss closer cooperation on health bills on May 1. Contact Rebekah about resurrecting the youth tackle bill. Contact Ramos of Appropriations to discuss the $2M budget and also reach out to the Surgeon General. Find a speaker for an update on neuromuscular disease for the program meeting on Tuesday. Stella: Send a letter invitation to Ravindra Chandrashekh to speak on May 1 about MOC and its negative impact on patient care. Work with Johanna on the May 1 agenda, tentatively including: 8:00 -8:15 AM: "Making the Sausage" with Garrett Jansen 8:15 to 8:30 AM: "Working Together" with a CMA lobbyist 8:30 -9:00 AM: presentations about each BIll Concussion Epilepsy Prior auth and UR 10:00 AM: Questions part of the team visits offices, anyone else can stay for AAN and General neurologist MOC 11:30 AM: Lunch break 1:00 pm - 2:30 PM: Capitol tour 3:00 PM: Break 3:30 PM - 6:30 PM: CNS Reception Request an AAN speaker to discuss the need for general neurologist training emphasis while at Neurology on the Hill. Johanna: Add the need for general neurologist training emphasis to the survey. Add other items to the survey. Prepare meeting minutes with Dorian.
By Dorian Capers April 4, 2025
ABMS Maintenance of Certification (MOC) is a proprietary continuing education product that to date has no high-quality evidence that it improves patient care. The cost and burden associated with MOC remains a significant factor driving physicians out of medicine. Key Takeaways • ABMS's MOC program is criticized for lacking evidence of improving patient care and contributing to physician burnout and exit from practice. • MOC is effectively mandatory due to its integration into national credentialing systems, despite being labeled as voluntary. • Surveys show most physicians view MOC as unnecessary and financially motivated, with little clinical value beyond existing CME requirements. • The MOC program exacerbates physician shortages, impacting patient care access, especially in Healthcare Professional Shortage Areas. Editor's note: 2024 has been a year of innovation in primary care, from advancements in artificial intelligence to the growing role of value-based care. As we close out the calendar year, our "Best of 2024" series highlights Medical Economics' coverage of the past year's health care trends that have paved the way towards better patient care. The largest board certification organization in the United States, the American Board of Medical Specialties (ABMS), recently announced a record-breaking number of ABMS-certified physicians in the United States – 988,737 out of 989,323 physicians to be exact – easily cementing its monopoly status for its physician certification enterprise. Amidst their highly profitable business model is a significant, but little known, driver that is exacerbating burnout and hastening the exit of physicians from clinical practice. ABMS Maintenance of Certification (MOC) is a proprietary continuing education product that to date has no high-quality evidence that it improves patient care. The cost and burden associated with MOC remains a significant factor driving physicians out of medicine. READ THE FULL ARTICLE HERE
By California Neurology Society CNS April 4, 2025
Legislative Committee Meeting Minutes Here is a summary of the meeting:  The UAPD, celebrating 52 years in business and present in six states, primarily consists of MDs, NPs, mid-levels, and some dentists. George Osborne, hired by Dr. Weinmann over 20 years ago, attended the meeting. Two UAPD-sponsored bills were signed by the governor, but SB636, despite multiple attempts over 20 years, remains vetoed. Private sector doctors can join UAPD for an annual fee of $477. The governor signed AB310, addressing data collection disparities between private and public sector services. LA County doctors, with about 1,200 members, considered a strike last year. UAPD successfully introduced AB2889 to remove punitive sanctions for unlawful strikes. The state is hiring private doctors over civil service ones, leading to a disparity in pay. Current bills include one from Assemblywoman Baines and another from Dr. Joaquin Arrambula, an ER doctor. Dr. Weber, a pediatrician from San Diego, is also involved. The supervision of NPs has been a long-standing issue, with full autonomy at the county level but not at the state level. The UAPD is concerned about scope creep and the increasing roles of mid-levels. Psychiatry needs more doctors, and there is a high turnover due to term limits. The Medical Board, now more political, is seen as disciplining doctors rather than supporting them. Dr. Klingman discussed the need for supervision of NPs. Johanna raised concerns about Medicare privatization and lack of oversight. Dr. Klingman suggested a union for private doctors. Specialists face billing challenges, and Blue Cross and Blue Shield are accused of defrauding Medicare. Hospitals are losing money and closing. The Workers Compensation doctors are exempt from duty of care. The UAPD is considering a lawsuit for discrimination and working with the California Chamber of Commerce. The idea is to involve Public Employees in Workers Compensation cases. Newsom, seen as healthcare-friendly, will be replaced in 2026. The UAPD's agenda includes engaging neurologists in the legislature and addressing issues like drug expenses and transportation for epilepsy patients. Prior authorization for neurology should involve independent neurologists, and there are concerns about the cost and effectiveness of prior authorizations. The UAPD is considering a referendum on concussions.
By California Neurology Society CNS April 4, 2025
The September 19, 2024, LEDGE meeting focused on addressing challenges in physician board certification and advocating for increased choice among certification boards. The discussion, led by Paul Matthews, centered on empowering physicians to select from multiple recertification options, emphasizing the need for competition to improve the healthcare system.  Summary of LEDGE Meeting Minutes (September 19, 2024) The September 19, 2024, LEDGE meeting focused on addressing challenges in physician board certification and advocating for increased choice among certification boards. The discussion, led by Paul Matthews, centered on empowering physicians to select from multiple recertification options, emphasizing the need for competition to improve the healthcare system. 1. Main Topic: Physician Choice in Certification ◦ Discussion led by Paul Matthews emphasized advocating for physician options among certification boards (AOA, ABPN, NBPS). ◦ The goal is to address the lack of competition in the certification space, arguing that physicians deserve multiple recertification choices. ◦ Highlighted the existing precedent: AAN endorses multiple boards (e.g., UCNS and ABPN for Neurocritical Care). 2. Action Plan and Contributors: ◦ Letter Drafting: A key strategy is to draft a letter co-signed by state neurological societies, spearheaded by Dorian , Stella , and Johanna . ◦ The letter will articulate unified support for board certification options, targeting the AAN and CMA. ◦ Paul Matthews suggested leveraging media outlets like Practical Neurology and Neurology Reviews, with potential support from Allan Rapaport, to publicize efforts. 3. Next Steps: ◦ Initial focus on collaboration with the Massachusetts Neurology Society and California Neurology Society . ◦ October 2024 is a target to engage with the California Medical Association (CMA) to build broader support. ◦ Use CMA’s House of Delegates to push for rule changes, as most delegates are reportedly sympathetic. 4. Challenges: ◦ Steve Holtz pointed out that the CMA's historical focus on surgeons and generalists limits their attention to neurology issues. ◦ Holtz emphasized prioritizing state society endorsements to "build the armory" before approaching broader entities like the AAN. 5. Key Recommendations: ◦ Garner letters of support from additional state neurology societies to create national momentum. ◦ Engage with organizations like the United Council of Neurological Subspecialties (UCNS) , already endorsed by AAN, as potential allies. ◦ Address independent boards such as the American Board of Clinical Neurophysiology and Neurodiagnostic Medicine as part of broader coalition-building efforts. 6. Conclusion: ◦ The consensus is that a coordinated, state-led initiative is crucial for influencing national organizations like the AAN. ◦ Paul Matthews stressed the importance of making the letter widely known to generate visibility and pressure that cannot be ignored.
By California Neurology Society CNS April 4, 2025
California Senate Bill 636 (SB-636) focuses on workers' compensation and the utilization review (UR) process. Introduced by Senator Cortese, the bill amends Section 4610 of the California Labor Code. Here are some key points: • Medical Professional Licensing: SB-636 requires that medical professionals performing UR for California workers' compensation claims be licensed in California • Fairness and Transparency: The bill aims to enhance fairness, transparency, and accountability within the UR process by ensuring that evaluations of medical necessity and appropriateness of treatments are conducted by qualified professionals • Governor's Veto: The bill was vetoed by Governor Newsom, citing concerns about its implementation Click here to read the Governor's letter regarding Senate Bill 636
California's Capitol building rotunda photographed from the side
By California Neurology Society CNS April 4, 2025
Supporting the Epilepsy Transportation Accessibility Act is indeed crucial. This legislation aims to provide free transportation to young adults living with epilepsy, a group that faces social stigma, isolation, and underemployment despite their talents and achievements. By offering accessible transportation, we can empower them to succeed in various aspects of life. Download these resources to understand and send to your local representative: - Epilepsy Transportation Accessibility Act - Read the act definitions. - Position Statement - Learn about why we believe this legislation is imperative. - Support Letter - Download an editable support letter to send to your legislator or assembly member.
Show More