CNS Legislative Committee MEETING MINUTES - Wednesday, April 16, 2025
The team discusses their upcoming meeting on April 30th at the Citizen Hotel

Quick recap
The team discussed their upcoming meeting on April 30th at the Citizen Hotel, where they would form final meeting groups for May 1st and meet with legislators and their staff. They also prepared for a potential presentation, with flexibility to adjust based on group size, and discussed the need for a basic script for each person to follow during the meetings. The team also discussed their plans for adding legislative interests, focusing on issues: duty of care, epilepsy transportation, and youth tackle football, and the potential involvement of the YAWE team in the capitol presentations.
Next Steps
- Selim to update and print out the document with all bills CNS is tracking, including their stance and current status, for the April 30th meeting.
- Steve and Selim to coordinate on contacting Assembly member Tangipa's office to confirm his attendance at the conference.
- Joanna to write up a paragraph about the epilepsy transportation issue and send it to the group for review.
- Dorian to update the website with information about the Capitol tour, including a brief description and a link to register.
- Selim to include the youth tackle football resolution in the folder for legislators' offices.
- Joanna to prepare a 5-minute presentation with slides on the epilepsy transportation issue, to be inserted between Richard Pan and Jeff Klingman's talks on May 1st.
- Dorian to update the May 1st conference schedule, moving Richard Pan's talk to 10:20 AM.
- All members to meet next week at 7 PM to finalize and approve all written materials for the conference.
- Joanna to submit her presentation slides to Priscilla Graham for CME approval.
- Selim to follow up weekly with Assembly member Tangipa's office to remind them about the conference and reception.
Summary
Upcoming Meeting at Citizen Hotel
Stella, Steven, Dorian, Selim, Steve, and Johanna discussed their upcoming meeting on April 30th at the Citizen Hotel. The agenda included forming final meeting groups for May 1st, when they would meet with legislators and their staff. Selim mentioned that the meeting would be in person and start at 6 pm. Stella also mentioned the use of AI to record and take notes during the meeting. Johanna had sent prior meeting minutes; tonight’s which Stella would forward for approval and Dorian's posting.
Planning Office Visits and Meetings
In the meeting, Johanna and Stella agreed to prepare for a potential presentation, with flexibility to adjust based on group size. Selim outlined the plan to visit five offices, with two meetings at 1:30 PM and two at 2 PM, and one after that. The groups would consist of three to four people. Stella and Selim discussed the need to form meeting groups and the schedule for the visits. They also discussed the need for a basic script for each person to follow during the meetings. Selim confirmed that they have handouts summarizing each topic and letters of support or opposition. The team agreed to finalize the details during their meeting on April 30th.
Patient Stories for Legislative Presentation
In the meeting, Steven, Stella, Steve, and Selim discussed the preparation for a presentation to legislators. They agreed that each person should present a patient story related to a specific issue, such as Parkinson's, youth football, or brain computer interface. The stories should be rehearsed ahead of time to avoid any surprises during the presentation. Stella emphasized the importance of patient consent in the context of brain computer interface. The group also discussed the need for each issue to be presented briefly, with a total of 10 minutes allocated for all three issues. The conversation ended with the group agreeing to identify the presenters for each issue on April 30th.
Legislative Event Planning and Materials
The group discusses plans for an upcoming legislative event and related materials. They decide to create handouts for both legislators and their own group, covering their main focus issues as well as other neurology-related bills. Selim and Steve will collaborate on preparing a concise summary of relevant bills, including those supported by the California Medical Association. Johanna suggests inviting the authors and staff members of neurology-related bills to their reception, and Selim confirms he has received postcards to send out invitations.
Epilepsy, Duty of Care, and Youth Tackle Football
The team discussed their upcoming event, focusing on three key issues: duty of care, epilepsy transportation, and youth tackle football. They decided to invite a representative from the Republican party to the event, despite not having a direct connection to their issues. The team also discussed the possibility of overriding the governor's veto on duty of care. They agreed to stick to the three issues and use creative patient stories to support their cause. The team also discussed the potential of adding a resolution regarding youth tackle football, using the NFL's flag football solution as a template.
Planning for Upcoming Event Discussion
Stella, Selim, Johanna, and others discussed their plans for the upcoming event. They decided to include a talk by Scott about the conference calendar, a session on how to make a bill happen by Garrett Jensen, and a discussion on how CMA and CNS can work together led by Stuart Thompson. They also planned to involve young adults with epilepsy in their grassroots efforts. Jeff was assigned to give an overview of CTE and concussions, while Richard Pan was to share his experience as a legislator. The team also discussed the possibility of making a resolution happen.
CMA's Legislative Agenda and Influence
In the meeting, Steven expressed the need for the California Medical Association (CMA) to be more aware of the aggressive legislative agenda of their organization. Stella suggested that the CMA could gain more influence if they understood their efforts. Steve mentioned that Stuart Thompson, who is ahead of the advocacy unit, would be speaking on Thursday. Selim confirmed that Assembly member Tangipa had registered for the conference. The team discussed the need to follow up with Tangipa and other attendees. They also discussed the possibility of a capital tour and the need to register for it. Selim suggested that the resolutions folder should include the youth tackle resolution and the epilepsy transportation act. The team agreed to finalize the resolutions and leave them with the offices.
Epilepsy Transportation Issue Paper Discussion
In the meeting, Steven discussed the strategy of including a packet with their interpersonal presentation to legislators. He emphasized the importance of not overloading the packet and suggested including teasers to draw the legislators' interest. Johanna proposed writing an issue paper on epilepsy transportation and suggested a meeting to discuss and finalize the content. Stella suggested including a young adult with epilepsy in the group to present their separate issue. Steve agreed to the idea of introducing a spokesperson to discuss the difficulties faced by those dealing with transportation issues. The team agreed to meet again to finalize the content and strategy.
YAWE Team Involvement in Conference
In the meeting, Stella, Johanna, Steve, and Dorian discussed the upcoming conference and the potential involvement of the YAWE team. They agreed to have the YAWE team present at the conference and Johanna proposed to present a 5-minute talk about the finances of having a driver's license taken away, losing a job, and where the tax money is going. They also discussed the possibility of inviting the YAWE team to the conference reception. The team decided to move Dr. Pan's talk to 10:20 and Johanna eventually agreed to be a backup presenter if someone cancels. They also discussed the potential for Johanna and Jeff to share a slot in the conference. The team agreed to meet again next week to finalize the conference program and flyers.






