CNS Legislative Committee MEETING MINUTES - Wednesday, May 7, 2025

California Neurology Society CNS • May 16, 2025

Lobbying Efforts & The Importance of Building Relationships with Legislators

CNS Takes a picture with Legislative aide

Quick Recap


The team discussed the need for better communication about upcoming meetings and the success of their recent capital visits. They also emphasized the importance of maintaining relationships with legislators and the need for a separate organizing committee to manage the process. The team also discussed various topics, including lobbying efforts, the importance of building relationships with legislators, the need for volunteers to establish contacts in local legislator offices, and the importance of maintaining relationships with legislators.


Next steps

  • Selim to send out meeting agendas at least 5 days in advance, with a reminder on the day of the meeting.
  • Selim to update the group on the status of SB 44 after reaching out to Mr. Thompson.
  • Selim to draft letters of support for AB 350 and AB 489.
  • Selim to create a list of 10-20 endorsed legislations to send out to members for prioritization.
  • Jeff to provide Saleem with contact information for CMA staff involved in organizing their legislative advocacy day.
  • Jeff to look into the status of CNS resolutions submitted to CMA and provide an update.
  • Joanna to check her email for any updates on the resolutions submitted to CMA last year.
  • All members to write down ideas for a survey to send to neurologists before the next meeting.
  • Selim to work with Dorian to post the next meeting agenda a week in advance.
  • Stella to forward Selim data on fluoride and mental retardation for the support letter on AB 350.


Summary


Improving Communication and Capital Visit Success

In the meeting, Stella, Selim, Steve, Steven, and Joanna discussed the need for better communication about upcoming meetings. They agreed to have a standing meeting on the third Wednesday of every month, with a week's notice and a reminder email on the day of the meeting. They also discussed the success of their recent capital visits, with Stella and Steve receiving positive feedback on their preparation and organization.


UC Davis Faculty Meeting Success

Stella and Steve discussed the successful UC Davis faculty meeting, where they received positive feedback and support from the attendees. They also praised the epilepsy group for their contributions and the professionalism displayed during the meeting. Steven suggested that future meetings should be independent events, with attendees arriving the night before for orientation, and then departing later that day. The team agreed with this idea and expressed their willingness to participate in such events.


Strengthening Lobbying Efforts Through Relationships

The team discussed the effectiveness of their lobbying efforts and the importance of building relationships with legislators. They agreed to focus on three key issues each year and to organize a one-day event annually to meet with legislators. The team also emphasized the need for volunteers to establish contacts in local legislator offices. Stella suggested involving their Uc. Davis partners in the process to train them and build stronger relationships. The team agreed to consistently implement this approach to strengthen their lobbying efforts.


Maintaining Relationships with Legislators

The team discussed the importance of maintaining relationships with legislators and the need for a separate organizing committee to manage the process. They agreed on the need for a regular meeting with legislators, possibly in their districts, to keep the connections fresh. The team also discussed the criteria for selecting attendees, emphasizing the need for commitment to the organization and attendance at future meetings. They agreed to reach out to their UC Davis colleagues to get their contact information and potentially involve them in the lobbying process.


Neurology Advocacy Budget and Accommodation Discussion

Steven proposed a separate entity for neurology advocacy, independent of educational meetings, with a budget to be carved out from existing funds. Stella agreed, suggesting unspent funds return to the program committee. Selim suggested further discussion on the agenda for the next meeting. Steven emphasized the need to identify the number of people to accompany them and their accommodation costs. Stella agreed on the budget and the need for informal training. Jeff suggested a cost-saving approach similar to the CMA's.


Sacramento Training and Legislative Advocacy

Jeff discussed the logistics of a training event in Sacramento, California, emphasizing the importance of neurology-specific issues and the potential for cost savings. He also highlighted the value of maintaining a relationship with the California Medical Association (CMA) for legislative advocacy. Stella and Steve agreed on the need for leadership in negotiating with CMA, particularly regarding neurology-related legislation. Selim was tasked with reaching out to a lobbyist for updates on the current language of a bill. The team agreed to move on to the next item, with the understanding that they could revisit the current topic later.


Fluoride Treatment Coverage Support

The committee discusses supporting a bill requiring health insurance plans to cover fluoride varnish treatments. Jeff emphasizes the importance of being clear and direct in their support, stating that fluoride does not cause mental retardation and that they strongly support public health measures like tooth fluoridation. He advises against using nuanced language or discussing technical details, suggesting instead to focus on the safety and effectiveness of fluoride treatments. Stella mentions data on the benefits of fluoridation in reducing tooth decay, but the group agrees to keep the message simple for political purposes.


Resolutions and AI Discussion

The team discussed various topics, including a letter of support for a group and a resolution related to artificial intelligence. They also discussed the status of resolutions submitted to CMA, with Stella mentioning three resolutions submitted last year, one of which was on gun legislation. The team agreed to check the status of these resolutions.


CMA Resolution Updates and Legislative Day

Jeff and Stella discussed the status of submitted resolutions at CMA. Jeff suggested that Saleem could reach out to CMA directly for updates. Stella asked if there was anyone at CMA Saleem could contact directly, and Jeff agreed to look into it. Jeff also mentioned that he would find out who is involved in setting up Legislative Day so Saleem could contact them. Stella suggested inviting Stuart Thompson, who had expressed interest in being more involved, to a Zoom meeting with doctors. Jeff agreed that this could be a positive development.


CMA Engagement and Collaboration Strategy

Jeff emphasized the importance of increasing engagement with the Canadian Medical Association (CMA) to leverage their expertise and amplify their voice. He clarified that as a component medical society, they already have a level of membership and engagement with the CMA. Stella expressed her desire to work closely with the CMA on neurology issues, while Steve suggested a collaborative approach rather than an adversarial one. The team agreed on the need to focus on overlapping interests and not antagonize each other over non-overlapping areas.


Neurology Community Prioritization and Advocacy

The team discussed the need to focus on the neurology community's priorities, with a particular emphasis on prior authorization. They considered sending out a survey to gather input from neurologists on what they want to focus on. The team also discussed the importance of patient advocacy and the need to understand what patients want from their care. They considered involving other neurology patient groups in future conferences and using their website to gather opinions from members. The team also discussed the need to build up the policy on duty of care and the implications of practicing medicine without a license.


Healthcare System Transparency and Urban Planning

The meeting focused on discussing the issues in the healthcare system, particularly the high costs of medical care and the need for transparency in the use of Medicare tax dollars. The participants agreed that the current system is driven by business interests rather than a duty of care for patients. They discussed the need for a shift in focus towards the physician-patient relationship and the importance of doctors being in charge of healthcare decisions. The group also considered the impact of urban planning on public health and the need for more walkable communities. The conversation ended with plans to create a survey to gather more ideas on these issues.

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Quick recap The team discussed the financial implications of transportation for people with epilepsy and proposed potential solutions, including allocating a dollar from truck registration towards retraining or local transportation budgets. They also discussed healthcare policies, particularly a bill aiming to align the standards of administering life-saving medicines to people with seizures in adult day centers with FDA standards. Lastly, they discussed the risks of head injuries in children playing tackle football and the potential for introducing a bill to raise awareness about the impact of head injuries on children's brain development. Next steps Selim to send conference information to Sean Porter. Selim to create or coordinate creation of a formal invitation for the legislative reception on May 1st. Johanna to contact Sean Porter about potential legislation sponsorship and discuss the epilepsy transportation issue. Stella to write a letter to the NFL praising them for flag football and encouraging them to promote safety in youth football. Johanna to resubmit the full CMA resolution documents, ensuring all content fits within the submission guidelines. Selim to contact the Governor's office and healthcare representatives to invite them to speak at the May 1st legislative day. Johanna to attend the CMA legislative day on May 21st, arriving the night before. Jeff to attend the CMA legislative day on May 21st. Legislative team to continue pursuing the head injury bill with potential sponsors. Johanna to follow up with Michelle Rodriguez's office about attending the May 1st reception and potentially meeting with the team. Summaries Transportation Funding for Epilepsy Patients Johanna discussed the financial implications of transportation for people with epilepsy, suggesting that those who cannot drive due to their condition should receive a portion of the taxes paid by those who can drive. She proposed a potential solution of allocating a dollar from the registration of 18-wheeler trucks towards retraining or budget for local transportation departments. Steve agreed with Johanna's points about the funding and taxation system, but expressed concerns about the feasibility of taxing truck drivers due to their strong union. The conversation ended with Stella and Nick joining the conversation. Healthcare Policy Discussion and Support Selim, Dr. Stella Legarda, Dr. Joanna Rosenthal, and Steve Cattolica met with Nick, a legislative representative, to discuss healthcare policies. They expressed support for a bill, Assembly Bill 369, which aims to align the standards of who can administer life-saving medicines to people with seizures in adult day centers with FDA standards. They also discussed the possibility of Nick's office giving a talk about the bill at their upcoming conference in Sacramento. Additionally, they mentioned a previous bill, the Levine Bill, which they supported and was recently passed. Addressing Tackle Football Risks in Children Johanna and Stella discussed the risks of head injuries in children playing tackle football, particularly in the developing brain. They mentioned a bill that partially went through last year, which required parents to sign a waiver acknowledging the risks. They also discussed a study by Boston University's CTE Center, which found that 100% of professional football players under 30 had chronic traumatic encephalopathy (CTE). Stella suggested that the National Football League should prioritize long-term brain health in children and proposed a joint resolution between the House and Senate to create an age limit for tackle football, similar to other contact sports. Addressing Head Injuries and Epilepsy In the meeting, Johanna, Stella, and Nick discussed the possibility of introducing a bill to raise awareness about the impact of head injuries on children's brain development and the subsequent challenges faced by those affected. They agreed that the bill should be the primary focus, with a resolution as a fallback option. Nick committed to discussing the idea with his team and superiors, acknowledging the challenge of securing funding in the current budget deficit. The team also discussed the potential for job training programs and transportation assistance for individuals with epilepsy who lose their driver's licenses. The conversation ended with the understanding that the issue is underserved and needs to be addressed. Bill Language and Legislative Session Nick agreed to follow up on the ideas discussed with his team and send the bill language to Stella for support. Johanna reminded Nick of a February 21st deadline for new legislation and asked about the number of bills his department was sponsoring. Nick clarified that they were limited due to the shortened session and the new member's role. Johanna proposed an invitation for Nick's department to attend the legislative session on May 1st and visit the office in the Capitol. Nick agreed to this and provided Selim with the scheduler's email. Steve expressed his appreciation for the bill and the progress it aimed to achieve. State Funding and Project Income Johanna and Stella discussed the challenges of generating income for their projects and the need to approach the state for funding. They also discussed their interactions with the Principal Consultant on the Senate Transportation Committee, Melissa White, who advised them against asking for money, suggesting instead to extend the service to the population. Johanna expressed her belief that they could find a workaround and generate income from the state, while Stella emphasized the importance of presenting their goals clearly and avoiding the perception of asking for extra money. They agreed to continue their efforts and to invite the legislative assistant to a meeting to further discuss their plans. Youth Sports Concussion Prevention Efforts Stella, Johanna, and Selim discussed the committee's legislative efforts, particularly focusing on concussion prevention in youth sports. They agreed on the need for a joint resolution between the House and the Senate to limit contact sports for under-12s, rather than a bill. They also discussed the potential for using the legislation as a bargaining chip with the NFL. Johanna mentioned that she had sent letters to the NFL and other organizations, and Stella suggested writing a letter to the NFL praising their adoption of flag football. The team also discussed the importance of Selim speaking up in meetings, as he has a strong understanding of the legislative process. Lastly, they planned to invite representatives from the Governor's office to their upcoming legislative day. Epilepsy Medication and Transportation Discussion Johanna, Stella, Jeff, and Selim discussed various topics, including epilepsy medication, transportation for epilepsy patients, and potential legislation. Stella mentioned a bill she was involved with last year, which allowed school personnel to administer epilepsy medication to students. Johanna suggested a new approach to claw back some of the money epilepsy patients pay for transportation they can't use. Jeff agreed, stating that it wouldn't cost much for transportation agencies to provide free transportation for epilepsy patients. They also discussed the possibility of bringing the issue to a state level, as opposed to individual municipalities. Selim asked about reaching out to Sean Porter, and Johanna agreed to do so. Lastly, they discussed the upcoming CMA resolutions and the possibility of attending a legislative day on May 21st.
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Legislative Committee Meeting Minutes Here is a summary of the meeting:  The UAPD, celebrating 52 years in business and present in six states, primarily consists of MDs, NPs, mid-levels, and some dentists. George Osborne, hired by Dr. Weinmann over 20 years ago, attended the meeting. Two UAPD-sponsored bills were signed by the governor, but SB636, despite multiple attempts over 20 years, remains vetoed. Private sector doctors can join UAPD for an annual fee of $477. The governor signed AB310, addressing data collection disparities between private and public sector services. LA County doctors, with about 1,200 members, considered a strike last year. UAPD successfully introduced AB2889 to remove punitive sanctions for unlawful strikes. The state is hiring private doctors over civil service ones, leading to a disparity in pay. Current bills include one from Assemblywoman Baines and another from Dr. Joaquin Arrambula, an ER doctor. Dr. Weber, a pediatrician from San Diego, is also involved. The supervision of NPs has been a long-standing issue, with full autonomy at the county level but not at the state level. The UAPD is concerned about scope creep and the increasing roles of mid-levels. Psychiatry needs more doctors, and there is a high turnover due to term limits. The Medical Board, now more political, is seen as disciplining doctors rather than supporting them. Dr. Klingman discussed the need for supervision of NPs. Johanna raised concerns about Medicare privatization and lack of oversight. Dr. Klingman suggested a union for private doctors. Specialists face billing challenges, and Blue Cross and Blue Shield are accused of defrauding Medicare. Hospitals are losing money and closing. The Workers Compensation doctors are exempt from duty of care. The UAPD is considering a lawsuit for discrimination and working with the California Chamber of Commerce. The idea is to involve Public Employees in Workers Compensation cases. Newsom, seen as healthcare-friendly, will be replaced in 2026. The UAPD's agenda includes engaging neurologists in the legislature and addressing issues like drug expenses and transportation for epilepsy patients. Prior authorization for neurology should involve independent neurologists, and there are concerns about the cost and effectiveness of prior authorizations. The UAPD is considering a referendum on concussions.
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The September 19, 2024, LEDGE meeting focused on addressing challenges in physician board certification and advocating for increased choice among certification boards. The discussion, led by Paul Matthews, centered on empowering physicians to select from multiple recertification options, emphasizing the need for competition to improve the healthcare system.  Summary of LEDGE Meeting Minutes (September 19, 2024) The September 19, 2024, LEDGE meeting focused on addressing challenges in physician board certification and advocating for increased choice among certification boards. The discussion, led by Paul Matthews, centered on empowering physicians to select from multiple recertification options, emphasizing the need for competition to improve the healthcare system. 1. Main Topic: Physician Choice in Certification ◦ Discussion led by Paul Matthews emphasized advocating for physician options among certification boards (AOA, ABPN, NBPS). ◦ The goal is to address the lack of competition in the certification space, arguing that physicians deserve multiple recertification choices. ◦ Highlighted the existing precedent: AAN endorses multiple boards (e.g., UCNS and ABPN for Neurocritical Care). 2. Action Plan and Contributors: ◦ Letter Drafting: A key strategy is to draft a letter co-signed by state neurological societies, spearheaded by Dorian , Stella , and Johanna . ◦ The letter will articulate unified support for board certification options, targeting the AAN and CMA. ◦ Paul Matthews suggested leveraging media outlets like Practical Neurology and Neurology Reviews, with potential support from Allan Rapaport, to publicize efforts. 3. Next Steps: ◦ Initial focus on collaboration with the Massachusetts Neurology Society and California Neurology Society . ◦ October 2024 is a target to engage with the California Medical Association (CMA) to build broader support. ◦ Use CMA’s House of Delegates to push for rule changes, as most delegates are reportedly sympathetic. 4. Challenges: ◦ Steve Holtz pointed out that the CMA's historical focus on surgeons and generalists limits their attention to neurology issues. ◦ Holtz emphasized prioritizing state society endorsements to "build the armory" before approaching broader entities like the AAN. 5. Key Recommendations: ◦ Garner letters of support from additional state neurology societies to create national momentum. ◦ Engage with organizations like the United Council of Neurological Subspecialties (UCNS) , already endorsed by AAN, as potential allies. ◦ Address independent boards such as the American Board of Clinical Neurophysiology and Neurodiagnostic Medicine as part of broader coalition-building efforts. 6. Conclusion: ◦ The consensus is that a coordinated, state-led initiative is crucial for influencing national organizations like the AAN. ◦ Paul Matthews stressed the importance of making the letter widely known to generate visibility and pressure that cannot be ignored.
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